Konrad Maruszczyk1, Olalekan Lee Aiyegbusi1-4 , Thomas Keeley1,5 , Melanie J. Calvert1-4 1 Centre for Patient Reported Outcome Research and Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK2 NIHR Blood...
Nicole Billingy, MScAmsterdam UMC “But we’re already easy to reach. Patients know where to find us if there are symptoms.” This was often the initial response when we introduced the SYMPRO-Lung study to pulmonologists and specialized oncology nurses in participating...
Xin Shelley Wang, MD MPHDepartment of Symptom Research, The University of Texas MD Anderson Cancer Center When patients with cancer are treated with radiation therapy (with or without chemotherapy), more than half will develop moderate to severe therapy-induced...
Jae-Yung Kwon, PhD RNUniversity of Victoria Patient-reported outcome measures (PROMs) assist researchers and clinicians in hearing patients’ voices. However, PROMs lack contextual details and insights into why patients’ health and well-being are improving,...
C. Allyson Jones1,2 , Geneviève Jessiman-Perreault1 , Ania (Anna) Kania-Richmond1,3 , Amy Metcalfe 3,4 , David A. Hart1,5, Lauren A. Beaupre1,2 , on behalf of the Bone and Joint Health SCN 1 Bone and Joint Health Strategic Clinical Network, Alberta Health Services,...
Lillian SavicFACITtrans The purpose of this study was to translate and linguistically validate the EXAcerbations of Chronic pulmonary disease Tool (EXACT) instrument into Hausa, Igbo, Swahili, and Yoruba for use with patients in Kenya and Nigeria, as well as to...
