Why is it so challenging to measure preference-based HRQoL in children? Potential measurement problems and challenges Preference-based HRQoL instrument that are used to generate quality-adjusted life years (QALYs) are preferred by funding decision-makers because they...
Stronger together: Patient engagement and integration of PROs in pediatric clinical practice and research prioritization This final session of the 2022 Measuring What Matters Symposium will provide case-studies of engagement of children and caregivers in the co-design...
By ISOQOL President Joanne Greenhalgh, PhD Dear ISOQOL Membership, As promised, this is my second letter to you. Through these letters I hope to not only keep you updated on major decisions, but to also keep you informed as to why these decisions are made. During the...
Per aspera ad astra: Advancement in measuring child health Measuring health of children and adolescents has substantially progressed but remains a challenging adventure. In the fourth session of the symposium, the potentials and limitations of selected, advanced...
How to meaningfully discuss meaningful change with children: Qualitative approaches The FDA is increasingly interested in patient perspectives of what level of change is important to support traditional quantitative methods of evaluating meaningful change and deriving...
Measurement framework and approaches for different age ranges and conditions in pediatric populations From childhood to adolescence, every child experiences changes in their roles and responsibilities and this in turn, changes the perceptions of their own functioning....
