Rob Arbuckle, MSc, and Nalin Payakachat, BPharm MS PhD2022 Measuring What Matters Symposium Co-Chairs We were very proud to host the 2022 Measuring What Matters Symposium, which focused on Measuring What Matters in Child Health: Challenges, Developments and...
Why is it so challenging to measure preference-based HRQoL in children? Potential measurement problems and challenges Preference-based HRQoL instrument that are used to generate quality-adjusted life years (QALYs) are preferred by funding decision-makers because they...
Stronger together: Patient engagement and integration of PROs in pediatric clinical practice and research prioritization This final session of the 2022 Measuring What Matters Symposium will provide case-studies of engagement of children and caregivers in the co-design...
By ISOQOL President Joanne Greenhalgh, PhD Dear ISOQOL Membership, As promised, this is my second letter to you. Through these letters I hope to not only keep you updated on major decisions, but to also keep you informed as to why these decisions are made. During the...
Per aspera ad astra: Advancement in measuring child health Measuring health of children and adolescents has substantially progressed but remains a challenging adventure. In the fourth session of the symposium, the potentials and limitations of selected, advanced...
How to meaningfully discuss meaningful change with children: Qualitative approaches The FDA is increasingly interested in patient perspectives of what level of change is important to support traditional quantitative methods of evaluating meaningful change and deriving...
