Description Reliability is a key property that needs to be assessed with all PROs, as outlined in regulatory guidance documents as well as psychometric best practice. That is, to what extent are my PRO scores reproducible or consistent across facets of interest, e.g....
Late-breaking abstract submissions are now open for digital poster consideration at the 2022 Annual Conference. Abstracts will be peer reviewed and subject to selection. Accepted abstracts will be presented as digital posters during the conference and published in...
Make Your Vote Count for the 2022 Board of Directors Election! VOTING CLOSES THURSDAY, 4 AUGUST The ISOQOL Nomination Committee is proud to present a strong slate of candidates to serve on the Board of Directors. As an active ISOQOL member, we ask that you vote for...
Why is it so challenging to measure preference-based HRQoL in children? Potential measurement problems and challenges Preference-based HRQoL instrument that are used to generate quality-adjusted life years (QALYs) are preferred by funding decision-makers because they...
Stronger together: Patient engagement and integration of PROs in pediatric clinical practice and research prioritization This final session of the 2022 Measuring What Matters Symposium will provide case-studies of engagement of children and caregivers in the co-design...